tag:blogger.com,1999:blog-5821799658844915805.post5465863835308855481..comments2023-10-24T16:16:29.095+01:00Comments on Club 166: Magical ThinkingClub 166http://www.blogger.com/profile/01816977079856902634noreply@blogger.comBlogger11125tag:blogger.com,1999:blog-5821799658844915805.post-65959512714429668052008-05-06T14:10:00.000+01:002008-05-06T14:10:00.000+01:00Removal of dairy took 48 hours - bye bye, diahhrea...Removal of dairy took 48 hours - bye bye, diahhrea, horrible rashes, nap/nightmares/terrors. One week later, one 1/8th tsp of butter, 2hrs and a 24hour meltdown, headslamming, diahhrea, nap/night-terror, nightmare (for him and his parents).<BR/><BR/>That's the mild one... did NOTHING for the severe one.<BR/><BR/>Cure - NO!<BR/>For everyone - No.<BR/>Help him - yes, but if he'd been "normal" wouldn't have someone told us to remove foods for the IBS?? Not per the dev ped "some kids with ASD are like that??"<BR/><BR/>I don't believe in cures... just hard work by the parents and child.farmwifetwohttps://www.blogger.com/profile/02680758336779501712noreply@blogger.comtag:blogger.com,1999:blog-5821799658844915805.post-35597754846364454932007-10-13T19:54:00.000+01:002007-10-13T19:54:00.000+01:00I keep thinking of Amigo's toddlerhood, with his n...I keep thinking of Amigo's toddlerhood, with his night terrors and his double ear infections and ear tubes...you get the picture. He's my biological child, and NT or Asperger's, he's a delight. Don't pity me folks; I may whine a little now and then, but I have a good life and good kids.Daisyhttps://www.blogger.com/profile/11647906900944224234noreply@blogger.comtag:blogger.com,1999:blog-5821799658844915805.post-33780218789731359402007-10-12T22:50:00.000+01:002007-10-12T22:50:00.000+01:00Joseph, I think you're right that, for hucksters,...Joseph, <BR/><BR/>I think you're right that, for hucksters, there's a lot to be gained from throwing all of those kids with some reactive attachment disorder/institutional autism into the general autism pool. If they specifiy a two year recovery period, they can show even more gains than they do with even the general autistic population.<BR/><BR/>I love how many supporters of bogus therapies specify that it can take years to see a difference. This virtually ensures that they will be successful, no matter what else the family happens to be doing (and of course whatever normal maturation/learning was going on). <BR/><BR/>I have even seen proponents of the GFCF diet say changes in behavior can take years. It takes 30 minutes for me to see a change in my body when I eat something really greasy. But it can take years for eliminating stuff to show a change. Right.<BR/><BR/>JoeClub 166https://www.blogger.com/profile/01816977079856902634noreply@blogger.comtag:blogger.com,1999:blog-5821799658844915805.post-71163243436640584582007-10-12T15:49:00.000+01:002007-10-12T15:49:00.000+01:00Forgive me, but I laughed out loud when (while rea...Forgive me, but I laughed out loud when (while reading the laundry list of the poor child's ailments) I came across "separation anxiety." Ahem. I think that must be hereditary, as all 5 of my children had it. :-)Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-5821799658844915805.post-4114643603755603492007-10-12T14:51:00.000+01:002007-10-12T14:51:00.000+01:00Like I said, Curebie is the nicest way I can put i...Like I said, Curebie is the nicest way I can put it. though, "goofy" fits well, and made me giggle.Suzannehttps://www.blogger.com/profile/02732095611947394379noreply@blogger.comtag:blogger.com,1999:blog-5821799658844915805.post-13412992147809795242007-10-12T10:52:00.000+01:002007-10-12T10:52:00.000+01:00how sad that the child's worth seems to be directl...how sad that the child's worth seems to be directly related to how much progress they make toward being the perfect child these parents (and most) feet entitled to.Amandahttps://www.blogger.com/profile/10283811824914940328noreply@blogger.comtag:blogger.com,1999:blog-5821799658844915805.post-88843399224185919212007-10-12T04:09:00.000+01:002007-10-12T04:09:00.000+01:00Unbelievable. My favorite line had to be:"They we...Unbelievable. My favorite line had to be:<BR/>"They were the only facility willing to perform biomedical testing for us. <I>You can read a very scientific explanation here</I>."<BR/>As opposed to a pseudo-scientific exlpanation?<BR/>Oh, so that's the kind of people the quacks are looking for!Jhttps://www.blogger.com/profile/10831843534657098189noreply@blogger.comtag:blogger.com,1999:blog-5821799658844915805.post-16924262383257544962007-10-12T00:46:00.000+01:002007-10-12T00:46:00.000+01:00The quacks could make a killing with this institut...The quacks could make a killing with this institutional autism. It looks like the kids have marked progress after they are adopted. It would be a matter of convincing the parents to try some hogwash, and then saying, you see, it worked!Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-5821799658844915805.post-73003235803719398712007-10-11T22:50:00.000+01:002007-10-11T22:50:00.000+01:00The MIND Institute had a researcher come and talk ...The MIND Institute had a researcher come and talk about his experience with the hideously abused and neglected kids in Romanian orphanages and how he developed a study based on getting Romanian families to consider being foster families (it's just NOT done there, hence the orphanages). <BR/><BR/>Anyway, they talked about neglect causing symptoms of autism. They talked a lot about the infectious diseases the kids had. But they didn't mention that if a girl is autistic (but not in an orphanage), and say 16 years old or older, she's more likely than a typical girl to end up raped, or just seduced, and pregnant and leaving a baby at an orphanage. <BR/><BR/>In my opinion, they ought to find a higher number of autistic kids in orphanages. Never mind the cases where the parents have a baby, intend to keep it but at age 24 months they figure that the kid is defective and drop him off at an orphanage, same thing, there will be more handicapped - including autistic kids in an orphanage. And one doesn't need to invoke "toxins" or try to blame vaccines or neglect to get that autism, though surely neglect is bad news for any child.<BR/><BR/>The MIND never put that lecture on the web, which is kind of unfortunate, the speaker had some great videos from Romania that showed how bad the situation was and how the kids thrived in foster care (which was of MUCH higher quality than foster care here, truly, much higher).Jennyhttps://www.blogger.com/profile/08185261414126581318noreply@blogger.comtag:blogger.com,1999:blog-5821799658844915805.post-30407272831417096942007-10-11T22:33:00.000+01:002007-10-11T22:33:00.000+01:00I'm referring to Pickel's article of course.I'm referring to Pickel's article of course.Another Autism Momhttps://www.blogger.com/profile/15068526422102642426noreply@blogger.comtag:blogger.com,1999:blog-5821799658844915805.post-74142559285472707712007-10-11T22:32:00.000+01:002007-10-11T22:32:00.000+01:00I loved the expression "goofy treatments". The who...I loved the expression "goofy treatments". The whole article is goofy.Another Autism Momhttps://www.blogger.com/profile/15068526422102642426noreply@blogger.com