tag:blogger.com,1999:blog-5821799658844915805.post1344264238172585165..comments2023-10-24T16:16:29.095+01:00Comments on Club 166: Mixed EmotionsClub 166http://www.blogger.com/profile/01816977079856902634noreply@blogger.comBlogger8125tag:blogger.com,1999:blog-5821799658844915805.post-65734308406851590502007-04-29T22:48:00.000+01:002007-04-29T22:48:00.000+01:00Autism Speaks doesn't speak for me, but, they are ...Autism Speaks doesn't speak for me, but, they are not even in the province where I live so I don't bother with them too much. I will occasionally sell ribbons that I make myself for Autism Awareness Month (which, for some reason, is in October here in Canada) and send the money as a donation to the provincial autism centre. I think the work Autism Speaks does to bring autism into the forefront is admirable but they need to do more to include all forms of Autism as well as support and education. I would love to have someone find the cause of autism so that we could finally put an end to it but we need someone to help us deal with what we have to deal with in the here and now and get away from the ifs and whens.<BR/><BR/>Lizlizziehoophttps://www.blogger.com/profile/17549192854811356907noreply@blogger.comtag:blogger.com,1999:blog-5821799658844915805.post-7625541321574583632007-04-29T22:28:00.000+01:002007-04-29T22:28:00.000+01:00Also struggling with this one. But for me, before ...Also struggling with this one. But for me, before my children had a diagnosis, I walked to support my friends (in the NAAR walk), because it was important to them. This year, I will continue to walk to support them, if not autism speaks. I like the t-shirt with a message idea. I have also attended some events/conferences that I (and other parents, advocates, teachers, etc.) have benefitted from, which were funded in part by AS, so I try to look at it that way.Angehttps://www.blogger.com/profile/00391321273245313098noreply@blogger.comtag:blogger.com,1999:blog-5821799658844915805.post-26359972472243532602007-04-28T21:43:00.000+01:002007-04-28T21:43:00.000+01:00I, too, have mixed feelings about Autism Speaks. T...I, too, have mixed feelings about Autism Speaks. They most definitely do not speak for me. I will not be walking for them locally, but I have an excuse. I'm working (judging a music festival) that day.Daisyhttps://www.blogger.com/profile/11647906900944224234noreply@blogger.comtag:blogger.com,1999:blog-5821799658844915805.post-43889844042290162482007-04-28T20:34:00.000+01:002007-04-28T20:34:00.000+01:00TEACCH is a wonderful organization. They could use...TEACCH is a wonderful organization. They could use money. I believe most spec ed classes use some of their research. Sincerely, DianeAnonymousnoreply@blogger.comtag:blogger.com,1999:blog-5821799658844915805.post-47722124786820929092007-04-28T20:22:00.000+01:002007-04-28T20:22:00.000+01:00T-shirt suggestions: "Autism: it's not what you th...T-shirt suggestions: "Autism: it's not what you think" (I believe it can be found at Cafe Press) or if you're feeling like really living dangerously: "Celebrate Neurodiversity" :) (definitely can be found at Cafe Press). <BR/><BR/>Estee has a great essay on <A HREF="http://joyofautism.blogspot.com/2006/03/economy-of-pity.html" REL="nofollow">The Economy of Pity</A> that nicely addresses the fund-raising issues. I sent our minister a copy when we received word that he was taking part in a Muscular Dystrophy fund-raiser last year.The Jedi Family of Blogshttps://www.blogger.com/profile/00318743997892332537noreply@blogger.comtag:blogger.com,1999:blog-5821799658844915805.post-52024768573607787342007-04-28T17:04:00.000+01:002007-04-28T17:04:00.000+01:00Go for the Hub t-shirt! Woo-hoo!!!!We definitely n...Go for the Hub t-shirt! Woo-hoo!!!!<BR/><BR/>We definitely need to start our own foundation, or findone that does more research about education and support than causes and cures. I doubt any of us individually have the energy to start, but perhaps a little from everybody would start up a little light?Joeymomhttps://www.blogger.com/profile/08254601805621175842noreply@blogger.comtag:blogger.com,1999:blog-5821799658844915805.post-31625293755514723552007-04-28T10:07:00.000+01:002007-04-28T10:07:00.000+01:00We need alternative charities.There;s TAAProject, ...We need alternative charities.<BR/><BR/>There;s TAAProject, based out of Canada, and there's one that christschool has said he's starting...<BR/><BR/>Unfortunately, and many would say this is pessimistic of me, Autism Speaks -started- with money, and that bright green snowball is growing all the time. Anything that starts smaller--with acceptable/important goals, and a -positive- message,--is going to need to get a lot of attention, and probably a lot of growth, fast in order to compete.<BR/><BR/>And that's assuming something bizarre doesn't happen to make Autism Speaks want to buy them out (and able to, somehow).<BR/><BR/>I was actually thinking about doing it myself for a while, but now, I'm thinking more about TAAProject. I don't have the energy to organize something small much less something that would need to change rapidly and continually.<BR/><BR/>Besides, as good as having multiple organizations might be in a positive environment, I think focus might be necessary in this one; Autism Speaks is a rolling juggernaut intent on crushing all things and people autistic.<BR/><BR/>They've even gotten Hillary Clinton proposing legislation to cure and prevent all autistics wherever they may be on the spectrum.Zaecus Celestishttps://www.blogger.com/profile/14560402588548561182noreply@blogger.comtag:blogger.com,1999:blog-5821799658844915805.post-8914201770003013562007-04-28T06:36:00.000+01:002007-04-28T06:36:00.000+01:00Both? Or is there a "Hub cap" (sorry, it's been a ...Both? Or is there a "Hub cap" (sorry, it's been a long week). <BR/><BR/>I have been having the same dilemma. There's a walk in the upcomig month and I really like to show solidarity with other families; Charlie's teacher mentioned it to us. The T-shirt is a great idea----I saw one that says "national stim team" and Jim likes the idea----kristinahttps://www.blogger.com/profile/01104388229716638534noreply@blogger.com