Showing posts with label publicity. Show all posts
Showing posts with label publicity. Show all posts

Monday, February 18, 2008

Facing Ignorance

How do you counter ignorance? Especially when that ignorance preys on the deepest fears of parents, and reels in parents with compelling anecdotes, pseudo science, and tales of government conspiracies?

Many parents, after getting a diagnosis of autism for their child, panic. They are confused, worried, and looking for direction. And rather than offer encouragement and hope for the future, many autism 'support groups', fueled by hope peddling purveyors of miraculous 'cures', tell these parents that their kids are autistic because of vaccines. That the government, doctors, and 'big pharma', all working together (both here and across the world) have all conspired together to suppress the fact that vaccines cause autism.

How do you counter the passionate beliefs of a number of parents that have bought into such nonsense, after spending thousands of dollars on supplements and possibly dangerous treatments, and who now see some 'improvement' in their children as they grow up and naturally mature?

With other parents.

Parents who have read the increasing number of dull and boring studies that show no linkage between vaccines and autism. Parents who finally say "Enough is enough", and come to see that there's no way the whole world is conspiring to keep them in the dark.

Years of dull, boring (but legitimate) scientific inquiry have not been enough to quiet the voices of the conspiracy mongers. So now the American Academy of Pediatrics (the AAP) is asking for parents to speak up and proclaim the truth. That even though we don't know all the things that cause autism, there is no linkage between vaccines and autism. That those who continue to support that argument are endangering public health. Whether it's measles outbreaks in Great Britain or San Diego, people's lives are being put at risk by the fear mongering that is causing people to reject vaccination.

The following is a letter from the AAP asking for parents to make themselves available for public comment. Please read the letter and consider offering your services. It may save a life.

Hello,

As part of our ongoing response to media stories regarding autism and
vaccines, the AAP communications department is compiling a list of
parents who support the AAP and are available for interviews. We are
looking for two types of parents who could serve as spokespersons:

Parents of children with autism spectrum disorders who support
immunization and who do not believe there is any link between their
child's vaccines and his or her autism.

Parents of children who suffered a vaccine-preventable illness. This
could be a parent who declined immunization, whose child became ill
before a vaccine was available, or whose child was ineligible for
immunization.

We are asking for your help identifying parents who would be good
spokespersons. They do not need to be expert public speakers. They
just need to be open with their story and interested in speaking out
on the issue. We will contact candidates in advance to conduct
pre-interviews, to offer guidance on talking to reporters and to
obtain a signed waiver giving us permission to release their name.

If a parent were placed on our list, we would offer their name and
contact information to select media. We hope to build a list of
parents from a wide range of geographical areas.

As the Jenny McCarthy and "Eli Stone" stories illustrate, this issue
is likely to recur in the national and local media. The AAP is
committed to doing all we can to counter such erroneous reports with
factual information supported by scientific evidence and AAP
recommendations.

The anti-vaccine groups often have emotional family stories on their
side. The ability to offer a reporter an interview with a similarly
compelling parent who is sympathetic to the AAP's goals is a powerful
tool for our media relations program.

Please contact me if you have any questions or to suggest a parent to interview.

Thank you,

Susan Stevens Martin
Director, Division of Media Relations
American Academy of Pediatrics


Those who wish to make themselves available can contact Susan Stevens Martin directly at

ssmartin@aap.org .

It's time to stop wasting time and money chasing rainbows. It's time for right minded people to stand up and be counted.

Saturday, March 24, 2007

Pressure Applied to Autistics



photo credit- leappbaby

In a troubling incident in Tulsa, Oklahoma, a mother is accusing the school system of child abuse for "rolling up" her 7 year old autistic son when he was out of control. This incident is troubling for a couple of reasons. First, most likely this is an all too common scenario of untrained staff overreacting in an inappropriate manner.
...The mom told police the boy's face, neck and shoulders were covered with marks that appeared to be tiny broken blood vessels under his skin. We talked to the doctor who saw the boy that day. He said the injuries were likely from screaming while being in a tight restraint for a long time. ...


This description is consistent with the child having force applied to him (squeezed tightly) while he was "rolled up". It was fortunate that asphyxiation injury did not occur, which could have caused brain damage or death. Although the injuries in this case were certainly uncalled for and serious, they didn't warrant any medical attention, and the child has returned to school.

The parent may be absolutely correct in pursuing legal redress, but this case is also troubling in that stories like this only serve to paint all autistic kids as wild, violent, and out of control, which makes it easier to dehumanize them and leads to societal acceptance of further abuse.

I certainly sympathize with the mother. About 18 months ago I had a similar incident occur with Buddy Boy. Although he did not end up with petechiae, and it wasn't a part of his Positive Behavioral Support Plan, staff at the school wrapped him in a heavy rug while he was screaming at them that he didn't want to be wrapped up. Deep pressure only works if it's what the person is seeking to calm themself, not if they're just pissed off about some innane thing that you're doing to them.

But I hate to see these things made into police matters. I'm worried that the next time the child is perceived to be "out of control" that the school calls the police, who will treat the child as a criminal and taser them (or worse). I'd much rather the school district act responsibly and realize that this technique was absolutely wrong (and could have resulted in worse injury or death), apologize (I can dream), immediately have an IEP meeting to determine whether the Positive Behavioral Support Plan that was in place was followed, and whether that plan needs to be revised.

The school district has already lined up another parent of an autistic child to defend their practice. So even if the original child's Positive Behavioral Support Plan wasn't followed, and even if the district overstepped their bounds, this case is lost in the forum of public opinion, and the biggest losers are all autistics, who are further viewed as violent, out of control, subhuman creatures.

Joe is 211